Julie's younger brother Duncan is depressed. I hesitate to admit to this because frankly it makes me feel like a fool. To have one child seeking psychiatric help is a misfortune, but to have two children... well at best it seems careless. At worst it leaves me open to accusations of raising my children badly, which of course I don't think are true, but I feel too tired to even argue over.
In many ways Duncan's problems are very different from Julie's. He feels depressed, he recognizes it as depression, and he has sought help. There are no reports of hearing voices, no sudden dramatic decline, and no dangerous impulsive behaviour. Although he is a teenager, and teenage depression is notoriously difficult to diagnose, his depression looks very like adult depression.
Unlike an adult though he will have to wait a long time for treatment. A GP will try to treat someone over sixteen, providing some first-line of treatment (usually pills) while waiting for specialist treatment, but they cannot treat under-sixteens and all they can offer is a referral. It is not difficult to get that initial referral through to specialist services for adolescents, but it is a referral to services that are frankly overwhelmed, and are currently in the process of a chaotic reorganization (and budget cuts).
The result is that the caseload has to be heavily prioritised. We waited months for an initial assessment only to be turned away at first. It took us two referrals to get them just to agree that Duncan was, as he said, depressed. On our first attempt we were turned away, not only without a diagnosis, but without treatment, support or alternatives. On the second attempt, backed up with evidence from his school, it was established that he was depressed. This generated a letter, and put him on two waiting lists, one for pills from a psychiatrist (which was supposed to happen soon), and one for talking therapy. Four months later he is still on both those waiting lists, with no sign of receiving any treatment. He has now waited with great patience and dignity for a total of eight months from the time that he first asked for help. He has not received so much as a single counselling session in that time.
Depression is emminently treatable; it makes no sense to ration access to treatment so heavily for depression in teenagers. Teenagers are no better able than adults to bear the pain and suffering of depression.
We know these services all too well from our experience with Julie. This is the same service that initially dignosed Julie as having mild depression and suggested that buying a dog for the family would help. I was glad when we said goodbye to these services recently as she graduated to adult services; I am not keen to see them again, and I find them in a worse state than when I last saw them. We know that any treatment Duncan does receive is not guaranteed to be the most effective, that it will be dogged by lack of training, resources and flexibility; there will be no choice of therapy, therapist or location.
What choice do we have but to look privately? Our son is suffering, we have the money (just), his case seems straightforward. It is hard to imagine that private care could have made a difference to Julie (would anyone have even taken her on when she needed inpatient care?), but it can probably offer something for Duncan. Private therapy can be no worse than public, and may be better. Crucially, we can walk away and find another therapist if we are unhappy, something that we never managed to achieve on the NHS.
I have always believed strongly in the principle of the NHS, but in this case CAMHS is not fit for purpose.

So get this. When my daughter was diagnosed with aspegers and referred to CAMHS for assessment I felt my parenting was under suspicion. Even now with both children out of school, I feel judged even though noone says anything directly. Its a horrid feeling.
ReplyDeleteRegarding CAMHS, I agree its a shambles. I have a whole load of complains regarding them: long waiting lists, inflexibility, no therapies etc etc. Our most recent issue was how our daughter was treated earlier this year when she started school refusing. The chief ed psychologist who was working with us wanted CAMHS to see her but they refused, saying that they had seen her a year earlier. I couldn't believe it; hadn't it occured to them that my daughter may have developed mental health issues in the intervening period? As someone with aspergers syndrome and now school refusing there was a high chance she was. As it was CAMHS wouln't budge and yet again it was up to us to help her feel better.
Like you we may be forced to go privately in the future because I have little confidence in the service. More worringly I don't think they understand autism and aspergers enough. They don't provide any therapies or support; all they do is offer medication. Frankly that is not enough.
Anyway, whatever you do, I hope Duncan soon feels better. Depression as a teenager is not nice as I know myself from when I was younger. Back then of course teenage depression was not recognised and I ended up struggling for years.
Deb x
Thanks so much for this Deb, and thanks for the retweet. Your comment that they wouldn't reassess your daughter is exactly the sort of thing I keep encountering - it's as if they live in a parallel universe in which teenagers don't really suffer mental illness but are these annoying people who keep pestering them!
DeleteCongratulations on the nomination for Top25 European blog or whatever it was, by the way - I've voted for you!
This comment has been removed by the author.
DeleteI'm really sorry to read the above. I agree, the whole thing is in a right mess now and not likely to improve in the short term. And with more and more youngsters under pressure it's not good.
ReplyDeleteI'm glad, for your sakes, that you can go an alternative route. But it seems so wrong to have to do so.
((((hugs))))
J x
Thanks Joy, I am so glad I spoke out now as I have had so much support both online and offline. I just hope I can get Duncan enough support too!
DeleteSo sorry to read this, I hate to think of priorities, because while your daughter needed urgent help, your son would probably improve really quickly with the right help. So they are both urgent cases, hope you get the right private help soon x
ReplyDeleteYes, the system is just crazy at the moment - you get prioritized by how close to disaster you are, so if you're just coping you don't get help for the longest possible time. It's agonising.
Delete*Squishes*
ReplyDeleteAm I right in thinking Duncan has an autism spectrum condition as well? I found that CAMHS couldn't understand that just because I wasn't outwardly showing typical signs of depression, I was still depressed underneath.
Depression in autistic people is very common, especially during the teenage years because of the amount of changes that are happening. It's not your fault, or Duncan's. In fact, that Duncan has managed to understand and express that he is depressed should help with getting it treated.
If you are going private, I hope you find a therapist who is willing to understand how autism affects Duncan. Normal therapy wouldn't work for me as my brain doesn't work that way, but I got a lot of help from those who took the time to understand how it does work and adapt to it.
Good luck.
Yes, he has, and have absolutely hit the nail on the spot. I think the problem with Aspergers can be not the way it makes you different, but with the way the world can't handle that difference! Yes, I'm a bit wary of any therapy I do get for him, from CAMHS or anywhere else. People often seem to think that he doesn't experience emotion because he doesn't express it, for example. And staff working with Julie are often alarmed by the things he says, which are completely normal for him! He can come across as brutally frank.
DeleteI meant *you* have absolutely hit the nail of the spot. Grrr!
DeleteI am so sorry that this is going on. Your family has suffered enough already. I hope Duncan finds some help soon, however you do it.
ReplyDeleteWhen I was a kid, depression was scarcely acknowledged for adults even, so my distress took until I was at university to be recognised and even then, not taken terribly seriously until a suicide attempt.
The NHS Mh services are also patchy, some areas are much better covered than others.
x
I am so sorry that this is going on. Your family has suffered enough already. I hope Duncan finds some help soon, however you do it.
ReplyDeleteWhen I was a kid, depression was scarcely acknowledged for adults even, so my distress took until I was at university to be recognised and even then, not taken terribly seriously until a suicide attempt.
The NHS Mh services are also patchy, some areas are much better covered than others.
x