Julie is dependent on the medicines she takes. She’s taken
them for so long – all through her adolescence and early adult-hood – that we
can’t always tell what is Julie, and what a side-effect of her medicines. A few days without them rapidly leads to
disaster. This doesn’t necessarily mean
that she can’t function without them at all – but it does mean that if she
comes off them suddenly, the powerful withdrawal symptoms are overwhelming.
There is one unexpected problem with logistics: GP surgeries only allow you to book 3 weeks in advance. This means that if you have treatment at 4 week intervals, like an injection, you can't book the next appointment before you leave the surgery - you have to remember to phone back a week later. Given that the huge benefits to everyone of keeping Julie out of hospital by giving her these injections, this rigid bureaucracy seems a false economy. A patient who has recognised problems with memory, and who struggles to take medication regularly, is expected to remember to make an extra phone call every month. It seems odd that we are the only people checking that she makes and keeps her appointment, and nobody following up to make sure that the treatment is effective.

It seems very odd, I agree, and not the standard of care you have a right to expect.
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I am puzzled, because I don't think Julie can be the only patient who encounters this. There must be a lot of patients who need regular treatments like this, and some of them must also find it difficult to remember. It feels like it needs some sort of guidelines.
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