"If you disagree with me then we won't be able to work together, and if we can't work together then we will have to terminate your daughter's admission." said the psychiatrist, furiously.
I was astonished by her reaction and genuinely puzzled. What had I done to upset her so much? Why should asking questions mean disagreement and why should disagreement make working together impossible? And could she really refuse to treat my (adult) daughter because she had fallen out with her mother?
Even by the standards of most of the meetings I've had with psychiatric consultants, this one did reach a new low. A roomful of people, none of whom I knew before I walked in, all staring at me in owl like silence, while I was harangued by their boss. I was just glad that for once Julie had been sent out while I was done over.
Julie's stay on this hospital ward has been complicated by a series of misunderstandings, one after the other - what medication she was on, and whether or not she could take trips out of the ward (something psychiatric patients know as "leave"). Like most misunderstandings they could have - and should have - been easily avoided by clearer communication and focusing on the needs of the patient. Just writing things down would have been a start. Feeling wretched, Julie appealed to me to speak to staff on her behalf.
Legally, wards do not have the right to detain patients who have chosen to be there voluntarily, but many wards do still lock all the patients in, regardless of circumstances. On this ward, despite the sign on the door, staff always refuse to let you out; the real ward policy is that there is no leave. I think this is wrong, and I think it betrays a ward where safety culture is put before an interest in helping patients get better.
I don't have a problem with agreeing restrictions on when a patient comes and goes, how long for or who with - I want my daughter to be safe, after all. But I would have liked to accompany her on a walk in the grounds one afternoon, to give her a break from a ward which was, at times, quite restive and where she had little privacy. I have seen Julie held in both high and low control environments, and high control environments have less successful outcomes. With control taken away from her, Julie withdraws into herself, and quickly becomes disturbed and disoriented; there are problems when she is discharged from a high control environment as she struggles to re-adapt to normal life. If she is encouraged to carry on engaging with the world outside - exercising, seeing friends, visiting shops - and the emphasis is on managing her own safety, she does much better and is more likely to manage well on discharge.
I tried hard to present this argument clearly and calmly to the consultant, but it was obvious that the mere fact of my disagreement marked me as a troublemaker. As well as threatening to send Julie home, she instructed her staff to start researching how Julie could move out of the family home into her own accommodation. Then she turned to me and told me that I was over-controlling Julie and needed to be less involved in her life. Julie is a sixth form student; she is 18 years old. How many sixth formers successfully live on their own, let alone one as confused and vulnerable as Julie?
Using everything I had learned in the past, I just took a deep breath and smiled at her. I know this woman's powers outside the confines of her ward are not as great as she thinks. I know that she is doing a difficult job and needs to appear to be the strong woman in front of her team. I also know that we are going to have to carry on working together for some time to come, and that I needed to be able to carry on visiting Julie while she was on her ward.

I don't think that I could have been so gracious, hope things improve soon x
ReplyDeleteThanks. Oh believe me, I used to kick off and scream the place down, but eventually I started to realise it did no good. If I can keep calm I don't hurt myself or Julie too much, and I feel I have won a moral victory.
DeleteI follow a few people on Twitter who have been admitted voluntarily to psych wards for various reasons, including suicidal depression and psychosis. It invariably happens that the 'voluntary' status ceases the moment you walk through the door; they are always locked (I suspect, because sectioned and informal patients are on the same ward) and leave is always restricted. If you're admitted before a weekend, chances are you won't be leaving before the first ward round. One of my friends challenged this and brought it to the attention of both the ward manager by showing him some policy document, and then her consultant. The consultant immediately gave her some leave, because he said that he wanted her to stay but also to have some freedom. The same hospital has also since banned patients from having chairs in their rooms, because of "an incident" -- exactly the sort of situation that leads to blanket rules (no mobile phones, no leave etc) that make hospitals an oppressive environment.
ReplyDeleteIn this case, the staff also appear to be lying to the patients, telling them they can leave "unless otherwise stated" but in practice refusing them all. It really doesn't help to build trust between the patients and staff. It's illegal (there is already a legal framework for detaining people if it's actually necessary), but it appears that everyone has decided the law is wrong and are conspiring to annul it in practice. It's interesting that in your case the consultant took a "my way or the highway" attitude. Others have said that when they tried to leave, they were told they would be sectioned if they insisted. I hope you can get her out of there soon as this consultant is obviously more interested in her power than in your daughter's welfare.
Yes, we've been threatened with sectioning when Julie was younger - of the two threats (of being sectioned or being thrown out) I know which I preferred! So I guess I was grateful to the consultant that her threat wasn't worse.
DeleteInteresting that in your friend's case the consultant was willing to negotiate to get compliance - if the patient doesn't have any leverage there is no negotiation. I appreciate it is a tough job - psychiatric wards are always in the firing line when something goes wrong - but we have to stand up and say that this is not the way to heal people.
Yeah I've only ever been "voluntary" when I went in of my own will. By which I mean, if I set a foot outside the door or refused a single pill Id have been immediately sectioned.
DeleteI think you should make a formal complaint about this woman. She's clearly a bully who responded to a reasonable request with anger against a patient's mother. She's obviously not capable of dealing with others except strictly on her own terms. You or your daughter should demand to be treated by someone else. Also, you could contact the CQC as they have a policy against these kinds of needless blanket rules. It always counts against an institution when they do an inspection report.
ReplyDeleteHow's Julie now? Is she home yet? I noticed you used the past tense in your last paragraph.
I am actually putting in a complaint - though I don't want to compromise Julie's care so I'm trying not to make too much of a fuss about it. Yes, she's still on the ward - past tense seems to have been a grammar fail brought on by exhaustion! I've also contacted the CQC who I have to say are really easy to talk to on the phone. They won't investigate indivdual complaints of this nature but they do add them up on file and use them when they carry out inspections.
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