Thursday, 17 April 2014

Bumps in the Road

Julie pulled off a pretty spectacular set piece last week.  She went into town on her own on the early morning bus (which in itself was something she had never done before); then once she was right inside the main shopping arcade she phoned her support worker.  She told him she had cut herself, taken an overdose, and was considering jumping off the car park roof.  There was no way any of us could reach her through the rush hour traffic: the only thing the support worker could do was call out the police and the ambulance service.  Then he hurried to try and make his way to her, while I talked to her on the phone to keep her calm and persuade her to stay in one place.

Not one of my wittier conversations: I was a bit stumped really.  Obviously I asked her if she was OK, if she was feeling sick, how much she had taken, that sort of thing.  Then hunting desperately for something to talk about, and not wanting to focus endlessly on the situation she was in, I started telling her what I was going to cook for dinner that night (risotto, since you ask).  I figured it was better to have a conversation about absolutely anything, just to keep her talking.  Fortunately, just as I was considering reading from the phone book, we were interrupted by the arrival of a paramedic.

Julie's set piece sounds a lot more dramatic than it was.  The cuts were pretty nasty, but she had managed to miss arteries and ligaments, so no long term damage and already healing well.  The overdose was the usual hapless packet of paracetamol.  The car park roof actually boiled down to sitting outside the public library, which admittedly is on the first floor, but not a very practical height for a suicide attempt.  Julie was tracked down within 20 minutes, checked over and stitched up in hospital, and back home by the evening, in a foul mood.

We were all disappointed, and out of sorts.  We were all wondering how we had got here again: had we missed something?  She had seemed so happy after her successful weekend away. That morning I had questioned why she felt she had to get that very early bus - but she had said she wanted to get to the library when it opened so she would have a whole morning to study.   It looked exactly like taking responsibility, exactly like taking on new challenges.  Later she told me she had been planning the whole thing for weeks; she had bought the blade, and the paracetamol weeks ago; she had swallowed the tablets before she even left the house, trusting to getting as far away as possible before they worked.

The difficulty here is always around trust.  If someone is not telling you these very serious plans, if someone is buying and concealing objects, lying about their intentions, then it is hard to trust them.  You can't trust them if they tell you that everything is fine and they have no plans to harm themselves; you cant trust them if they say they are just popping to the shop; you end up resorting to frisking them after every damn shopping trip.  Without trust you are without any sort of anchor.

The hard task is always to rebuild that trust: to remind yourself of what you know about that person, what is undeniably true about them.  However small that knowledge is now, you have to hang on to it with both hands, use it to piece together the relationship of trust you once had.  You have to be able to trust them again.  You have to resist the urge to protect them from themselves, the urge to stop them going out alone.


But the really important task is for them to be able to trust themselves again.  Thats harder still.

6 comments:

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    1. Thank you. I suppose it was inevitable - the illness doesn't miraculously go away. At least she's safe.

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  2. A very difficult one for you all. Trust is so hard to rebuild.
    J x

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  3. Thanks Joy. I suppose I should be glad it wasn't worse really.

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  4. Hello Julie's Mum - I am so sorry to hear about Julie's serious setback. I do hope that she is able to improve soon, and that you can rebuild trust with her again. I only found your blog a few minutes ago, when I was looking up the NHS page about psychosis. THank you so much for creating a blog about your experiences in caring for your daughter. I have a son who has just turned 16, and he has been experiencing psychotic episodes for over 18 months, and we have not been able to get any help for him. I am feeling overwhelmed and isolated. I am trying to get information about his condition despite the stupid psychiatrist thinking that I am 'making up' all of my son's symptoms! It helps me a little to realize that other parents are also bravely supporting their children through mental health problems. Best wishes, from Pamela in Canada

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    1. Hi Pamela, thanks so much for writing, and I'm really sorry to hear about your son. I am very familiar with feeling frustrated with mental health professionals! It's not that they're not good at their job, but sometimes they discount the experience of families, and this can be very difficult if you have key information you need to communicate. I don't think anyone really believed that my daughter experienced psychosis for years until she finally drew some pictures of her experiences - fortunately she's quite good with a pencil - and these were so graphic that people paid more attention. It might be helpful to see if your son can find some way of communicating his distressing experiences through pictures, poetry, music, clay modelling, acting, or anything else that he finds easier. Psychiatric sessions can be very sterile, and it is hard to put these things into words anyway. As to your feelings of isolation and being overwhelmed: yes, very familiar with these I'm afraid. It can take a long time for things to be resolved, so it is worth trying to find support. I used charity helplines like Young Minds and Rethink - I'm not sure what the Canadian equivalents are I'm afraid. But the best conversation I ever had was with a woman on the Samaritans phone line when I was feeling very desperate - she turned out to be one of the most useful people I ever spoke to! She was very matter of fact, very unshockable, and it just made me feel that it was ok to feel distressed, and that I could cope.

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