This is the third weekend since Julie returned to hospital, and the first time we have tried an overnight stay at home.
It is a process fraught with difficulty. What you might imagine was the easiest thing in the world - spending a night in your own bed - is very hard for Julie in this state. She approaches it with the trepidation that most of us would reserve for sky-diving. Right up until the very last minute - putting on her pyjamas - she keeps open the option of going back to the hospital, just as most of us would reserve the option not to jump out of the plane. But I'm glad to be able to report that she did jump and is fast asleep at this minute - the hospital tells me she will probably stay fast asleep until tomorrow morning. If she was not sleeping so well, I don't think it would be possible at all. She looks very sweet, tucked up in her cotton pyjamas, hugging her pillow.
It has been quite a busy day for Julie. Last weekend, when we had day visits, was perhaps too quiet. The simple activities that had been fine over the winter at home - watching TV, knitting, listening to music - left her only agitated and distressed. With this latest stay in hospital, I've begun to appreciate quite how difficult Julie finds the switch from hospital to home (and perhaps back again). The longer she spends in hospital, the harder it seems to find a way of being at home. Of course she is having to cope with changes to her medication, and when in hospital she is under permanent one-to-one supervision, so perhaps it is not too surprising that she is particularly fragile and confused at the moment.
Bearing in mind the need to try something a little bit different, I had tickets to the theatre this afternoon - a fast, upbeat production of the musical Footloose. I think Julie quite enjoyed it - it was obvious that she was finding it quite hard to enjoy anything, but we got to the end without her diving for the exit, so I don't think she was too unhappy. To get to the end of something in one piece, and still have the energy for the walk back to the car afterwards, is all I ask for these days. (For the record, I thought it was amazing, especially as the entire cast and crew were students. I loved it, and I can say that as someone who never rated eighties music and is not fond of musicals. The sheer energy of the production was infectious.)
Once home, after dinner, Julie suddenly got upset and cried a lot - not for any specific reason, as far as I could see. For a while, it did look as if the overnight stay hung in the balance. Poor Joe, who is always dismayed by weeping females, found it all very difficult, but we weathered it, with some (phone) support from the hospital. It is amazing how the simplest things can help - often the very things that you forget in the middle of a crisis. Out came the pack of cards, Julie remembered a new game she had just learnt in the hospital, and half an hour later we were all enthusiastically cheating and the mood had lifted right out of crisis mode. A few more ideas, and a cup of hot chocolate later, and suddenly it was time for pyjamas and bed.

I'm glad Julie managed a home stay, even while on such restrictive observations in hospital. Hopefully it'll help make the transition from hospital to home easier when the time comes, as I know how weird and unsettling it feels being home after being in hospital for a bit.
ReplyDeleteStill praying for you all. *Squishes*
Yes, I think I'm only just beginning to appreciate how weird it must feel to come and go from hospital at the weekends. It's obviously not that easy to adjust.
DeleteI really hope this doesn’t sound trite or condescending, but I find the way you approach your daughter’s difficulties so inspiring. I’m coming to your blog from the perspective of ‘Julie’ and it’s given/giving me a real insight into some of what my Mum must have felt when I was experiencing mental health problems and admitted to a CAMHS inpatient unit (several years ago). Although I had some idea, your writing has really got me thinking about what it must have been like for her. I was admitted to a unit on the first day of the Summer holidays and Mum was a teacher so obviously was on holiday too. While I missed being at home it never occurred to me that she might have missed me. OK so she had my three brothers to entertain, e.g. ferry to cricket/football/tennis etc(!) but missed out on all the shopping and crafty things we would get up to.
ReplyDeleteI’ve been thinking a lot lately about what it is like to be a parent as my brother has just had another baby, my second niece, and seeing him with her and my other niece (eighteen months) has brought home to me that when one’s a parent, one’s a parent for life with all that that encompasses. I have to say, you truly seem to embody that, reading about just how dedicated you are to ‘Julie’s’ recovery really inspires me. I know my Mum has that same dedication, she has remained a constant support, but reading about it from an outside perspective has really given me an appreciation of that. I have often wondered where she gets the strength to keep going, but all the above makes me think, one just does, right, through love, commitment and just wanting the absolute best for one’s child.
I really hope things start to improve for you all, I shall be continuing to read your blog.
Thank you so much for such a fantastic comment. Definitely neither trite nor condescending. It made me feel very encouraged and understood. I had months and years of feeling misunderstood and isolated (before I started the blog), but I knew that there must be other mothers in just the same situation as I am, and that gave me a kind of courage.
DeleteYou sound as if you really appreciate your mother and I am so glad. Best of luck to you and all your family.
Glad to read Julie came home for the weekend, whilst it was not without its difficulties it is still a good step towards the future, recovery and being discharged.
ReplyDeleteThank you as always - I do think every visit home is a step in the right direction, whatever happens.
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